The good thing for him is that he was so young when he was diagnosed that he probably doesn’t know anything else. Saying this from personal experience as I was diagnosed at 14 months in mid 80s. Of course, something like this would be amazing as I can’t tolerate even small amounts of accidental gluten but as I don’t know anything else I can’t even imagine anything else.
I also have really complicated relationship with hope. Mainly, I try not to hope as my body seems to be insanely problematic. I am disabled with multiple autoimmune diseases and genetic syndrome. While objectively I find the advancement in treatment interesting and amazing, I personally try not to hope. It is absolutely exhausting to get your hopes up only for the other shoe to drop.
I think having a digital ID system is very important in the modern age but where it is required needs to be limited. You should not need to use it where it isn’t strictly necessary. We have one in Finland too. You will almost entirely use it to use official services that would need your ID in person as well. In this proposal, the issue is not digital ID but how it would be used. First, where it would be used could compromise revealing too much of your identity when you want privacy and secondly and more importantly, it could compromise revealing your private actions to the government. Latter can move into highly problematic territory when criminalizing actions that should not be criminalized.
They have a HIPAA-compliant version although not sure how secure it really is. In general, companies seem to care more about companies’ privacy than individuals.
While the number of wars is less than 20 years ago there is an uneven but increasing trend for the past decade. Last year casualties were also more than at least 89 apart from a huge spike in 94. Amount of refugees has also been increasing in the past decade a little bit faster than the world population has.
Despite these facts, globally things are not at least yet out of hand. At the same time, there are many countries, especially in the West where current politicians are dismantling social security nets and human rights legislation. We are also increasingly seeing the effect of climate change on conflicts and displacement. Famine is thankfully rarer than ever before but we are so badly behind on any environmental action that it is pretty much guaranteed to happen more and more. I might be less pessimistic if the climate crisis weren’t staring us right at our faces. In general, historically things have gotten better and better with some lows. If we had time, we could probably sort ourselves out. There are also a lot of very smart people that could help with the existential threat but after the past decade, I don’t trust that they will be allowed to fix it.
You can also only be almost completely anonymous if you know what you are doing. The majority of people don’t know how. While data gathered from default users might officially be anonymized, the amount of data collected will often make you pretty easily identified. Zero-click spyware that has already been used against political opponents while not relevant to most average Joes do exist.
The world can’t be pulled up by your bootstraps. Most defeating is that you can do anything in your power and things still get worse. Yes, I might have more than a touch of secondary trauma but activism these days feels like hitting your head on the wall repeatedly. You can’t stop people from dying. You risk ending up in jail in too many countries that you once thought were civilized. And you are once again marching again Nazis when they sit in parliament in too many countries.