• 20 Posts
  • 71 Comments
Joined 1 year ago
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Cake day: August 14th, 2023

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  • My mums been in hospital for 10 weeks. She only 62 and was admitted for a fairly routine infection after chemo for breast cancer. Since she’s been in hospital I’ve lost count of all the things that have gone wrong but the most distressing thing is the hospital delirium she’s developed. I’d never have believed my mum could become so violent and abusive, it’s like she’s a completely different person. She has absolutely no agency over her body at the moment, she can’t even sit up unaided. It’s so horribly undignified that it’s completely cemented my decision to commit suicide once I get a terminal diagnosis (or a diagnosis that I know I couldn’t deal with graciously). I can’t have children so it’s a small comfort that I won’t inflict the pain and heartbreak I’m experiencing from my mum, but I don’t ever want to treat my partner how she’s treating my dad. I’m going out on my own terms if at all possible.




  • My partner is newly diagnosed at 40 and while on the surface it seems like he’s a just “shrug it off” guy, he’s not able to fully ignore it - there’s so much inner turmoil. He always feels bad for not doing XYZ and he’s never truly able to enjoy doing something else instead. He can be temporarily distracted by an enjoyable/relaxing activity, but he does care. He always cares. And he never feels like he deserves to enjoy anything when there’s so much to do at home/work/his life. It’s unbelievably distressing. ADHD is a spectrum. I’m so glad that you are able to shrug it off and enjoy other things, but that’s not the reality for all ADHD sufferers.





  • Yeah I paid for alien blue pro or whatever it was called. Then they killed the app and gave me a year of Reddit premium (my memory is shit, idk the proper name). After a month or so I switched to Apollo, Reddit’s app was just so shit. I left when Apollo died and now only use dystopia (an app designed for blind users) for the infrequent times I visit Reddit. No adds. It’s almost read only. But it’s ideal for visiting niche subs that aren’t on lemmy without giving Reddit clicks/seeing ads.




  • I’m mainly bed bound. I cannot maintain my blood pressure when upright, even when sitting, I faint regularly unless prone. I still have to go to the hospital and doctors regularly however - that is in fact the only place I do go, excluding visiting my dying mum 100 miles away.

    I’m on chemotherapy - I’m immunosuppressed and very vulnerable to infection. I’m also prone to chest infections and have to keep warm. I have cold urticaria - I’m literally allergic to the cold. I have severe Raynaud’s disease - again I have to stay warm. I have severe arthritis, the cold makes this much more painful and restricts my pitiful mobility further.

    Nice assumption, but no I can’t afford a car either. I swap in my disability benefit in for a car on the “motability scheme”. It leaves me with a whopping £100 a week to live off of. I could have an electric scooter instead but I have nowhere to store it and it’s not suitable for someone so vulnerable to the cold. My car is a self charging hybrid. I would love an electric car but I rent a flat - there’s nowhere to charge it.

    My point is not moot, because manual wheelchairs can fit into the majority of places. I cannot just walk in when I arrive, I need my wheelchair.

    We only have the one compact/small family car for our household, plus my manual wheelchair. Getting an electric scooter wouldn’t, couldn’t replace the car so getting one (with some hypothetical money) would be even worse for the environment.

    I don’t actually live in a “motornormative” culture. I grew up in London and live in Birmingham. There’s trains, buses, trams, electric scooters and the tube, which the vast majority of people I know use over cars. Your questions (and assumptions) are pretty ableist tbh, and all I’m trying by to point out that disabled people aren’t the enemy. “Not everyone can walk or cycle” is a true statement. Let’s focus on the people that can walk and cycle instead of the small minority of us already penalised by society for having the misfortune to be sick or disabled.



  • Nothing in that video matches your claim. It shows disabled and elderly people can benefit from walkable cities and non-car-centric road planning, just like everyone else can. But I, like many others, CANNOT walk, cycle or use public transport, no matter how inviting the infrastructure or how much I dislike cars.

    Could I use a mobility scooter? Sure! But not in the cold and wet and not when I can’t afford one. I could use it in addition to my car to get out on nice days or for short journeys to my local town but not instead of. And what am I meant to do when I get to the shops or cafe or whatever? Mobility scooters don’t fit in shops/cafes/restaurants unless they’re new buildings, which in the UK they’re invariably not.

    Insisting that everyone can just use alternative means of transportation is untrue and unhelpful to the cause. A small percentage of people will always need cars, just like we’ll always need ambulances. Let’s focus on the abled bodied people who don’t actually need to be driving instead of blindly insisting that everyone is the same and one solution fits all.