Artist, Designer

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Joined 1 year ago
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Cake day: July 24th, 2023

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  • Oof I’ve had an experience with these meds…

    I used to take Humira for 5 years but my country stopped delivering it (I used to live in Venezuela), then I moved ti the US and started Humira again, but it was about 30-50% effective only, I still had a lot of pain

    I then went through Cosentyx and Taltz, none worked. Then I tried Enbrel, same effectiveness, got it through a foundation. Healthcare didn’t want to cover it and the foundation didn’t approve me if I had Healthcare.

    Got sick in the US, lost all my money (due to lack of money), so I spent the little I had saved to return to my country, moved to Brazil and I’m about to start Golimumab (Simponi) tomorrow, hopefully it works because I haven’t gotten medication in 2 months and the pain feels unbearable.

    Having said all this, if there is a speck of a chance that this helps people with AS and other similar conditions, it would make me happy. Having this kind of pain is unbearable.

    Sorry for the long comment, I suddenly wanted to rant about this!


  • Hope it’s not a stupid question but would this kind of thing work for ankylosing spondylitis??

    I ask because I suffer from AS the doctor’s that I’ve gone to are always arguing whether it’s an autoimmune or an autoinflammatory disease, and on the web it says that the underlying mechanism is either of the two as well.

    So it’s not clear to me whether it’s one or the other, or if itimplies the same thing. I’ve read a huge deal about AS but I’m not really good at biology or medicine to understand a lot.

    Honestly the only reason I’m commenting -and asking- here, is because I want to have hope that this actually leads up to something that can help me stop this fucking pain that makes me feel like I want to die (figuratively) but I’m afraid of this being a clickbait article.

    Also my English is not the best so sorry for any mistakes and for the long comment.